Biofilmaker

The first time I heard the word Biofilm, I thought it was all starting to sound a bit sci-fi; I did think that people of the heath forums I follow on Facebook, were being a bit kooky. I was to discover though, that Biofilm is more relevant to my health than I ever could have imagined.

Also known as extracellular polymeric substances (EPS), a slimy substance consisting largely of polyssacharides  proteins, glycoproteins, and glycolipids, and in some cases, surprising amounts of extracellular DNA (e-DNA), Biofilm is a protective matrix that houses various organisms and pathogens.

“If biofilms can be metaphorically called a “city of microbes” (24), the EPS represent the “house of the biofilm cells.” The EPS determine the immediate conditions of life of biofilm cells living in this micro-environment by affecting porosity, density, water content, charge, sorption properties, hydrophobicity, and mechanical stability (6).”

When protected by biofilm, pathogens become almost impenetrable, they appear to work together as a community, and mutate into something that can become uncontrollable. This is one of the reasons why Lyme Disease is so difficult to eradicate. Together they are stronger.

There is a lot of information on what is known as ‘biofilm busting’, lots of herbs and enzymes that can facilitate the arduous task of breaking down the bioflm in order to treat diseases,  but it seems to me that measuring the efficiency of these busters is tricky. Often we rely on how terrible we feel to know if a product or protocol is working, which isn’t pleasant. But when this biofilm resides in the gut, well you know when you get that stuff out. But whats in it?

More and more people are discovering they are harboring this mysterious goop like stuff inside them, and going to great lengths to get it out. It can be linked to IBS, Ulcerative Colitis, even Crohns Disease, and has been given different names such as ‘mucoid plaque‘ and ‘ropeworms‘. Many different and dangerous toxins and pathogens are released when it is removed, and so removal needs to be done carefully, with use of toxin binders to mop up its aftermath. Many people all over the world are sharing tips and experiences online, some use enemas, anti parasite medications seem to help, but I have found the most helpful and affordable way to remove it is by drinking Psyllium and Bentonite shakes, or PB shakes as they are known. Add charcoal to this and it, for me, works a treat!

I have been drinking these shakes for about 2 or 3 years now, and I still remove this strange substance. It appears to grow quite quickly so its important to be consistent in whatever method you use. For many of us with leaky gut or dysbiosis, its evident that the biofilm does not stay in the intestines but can migrate around to the organs, and almost any tissue. Observing what is going on inside the body with bioresonance scanning, it shows that, like parasites, it particularly likes the gallbladder, this seems to come hand in hand with the infection which is commonly known as Ropewom.

Is this Ropeworm biofilm? well its a type of biofilm, in that it is harboring pathogens, but exactly what it is nobody seems to know. There are parents with autistic children that have found to be carrying Ropeworm, and the symptoms often reside when the Ropeworm infection is lessened. What most adults seem to have in common, who find this stuff inside them, is chronic disease. Most commonly Lyme and its co-infections are the pathogenic diseases, but also pathological problems such as gastrointestinal diseases and autoimmune diseases. Many of these problems seem to improve after long term treatment for Ropeworm. But only self treatment is possible. It has never been officially diagnosed and is the source of much contention within the medical profession, mainstream and alternative alike. The argument has been about whether or not this organism is a helminth (worm) or not. It behaves like a parasite, but so far no worm DNA has been found, though without funding adequate testing has not been possible.

Why is this so relevant? well finding that the removal of an unknown organism from ones body improves physical health and well-being is pretty groundbreaking. If chronic disease, many which are said to be a mystery as to exactly what causes them, is so widespread among sufferers doesn’t that suggest that were on to something here? If it is a worm then we should be able to remove it with anti worm medications, but they seem to be only partially effective. Does this mean that it is part worm, and something else? Could it be that the ‘city of microbes’ could be mutating into something more than the sum of itself?

References;

Biofilm in the gut http://www.nature.com/articles/npjbiofilms20155#mucosal-biofilms-do-they-exist

Ropeworm http://arxiv.org/pdf/1301.2845

Ropeworm and autism http://ropeworms.com/autism/

Bioresonance https://www.youtube.com/watch?time_continue=56&v=Ly2n8lFZMeM

Lyme and Co-UK v USA.

I have probably seen around 20 different doctors and physicians in the last 4 years, trying to understand what is happening in my body. Each person I have seen has not given me ‘THE’ answers, rather small clues. This was frustrating in the beginning, as most of us rely on these professionals to sort our health out for us.

When I began to travel out of the UK to see specialists, I was struck by how unempowered we are in the UK with regards to our health. We expect our doctors to tell us whats wrong, and expect, most of the time, to be able to take something to fix us, and we DON’T expect to even look at our test results. In America they seem to find this absurd, even the most oblivious tended to organise their own health; ensuring they receive their own copies of all the reports their doctors receive. It is not unusual to question a diagnosis and request exactly what they feel needs to be done with regards to diagnosing and treating.

This is of course due to the fact that in the US, with the exception of more recent advancement in free medical treatment in the form of Obamacare, medical treatment is covered by insurance ensuring it’s a profit making industry where money talks, and therefore the patient has some control. The NHS on the other hand is a publicly funded healthcare system. The investigative journalist Jim Edwards puts it quite bluntly when he says; “The National Health Service is, as all Americans know and fear, a completely public “socialized medicine” system. It’s dramatically different from the US’s patchwork system of private providers and insurance companies.” In his article he cannot praise the NHS enough, and quite rightly so, but that may depend on what is wrong with you. In the case of those with Chronic Illness’s, such as Lyme Disease and its many associated Co-infections (Lyme Disease never travels alone, often its co-infections are more debilitating and destructive than Lyme itself), the NHS appears to be lagging far behind.

The large majority of people diagnosed with Lyme Disease in the UK had to get their diagnosis outside of the UK in the private sector, the same goes with the treatment. With regards to the diagnosis, the problem is that the testing system they use in the UK is very out of date, therefore very inaccurate. A clinic that was set up by the NHS in Hampshire to treat Lyme Disease was closed down after only 6 months, leaving no support for those suspected of suffering with Lyme nor those diagnosed. After being negative in the UK (I was warned I would be), I was diagnosed positive in Germany at one of Europe’s most renown Lyme clinics the BCA , it cost around £3,000 with flights and accommodation, but sadly on my return the NHS still would not offer and support with my swiftly diminishing health, on the contrary, I was met with disdain and treated like a troublemaker for going abroad. This is not an uncommon story for those with Lyme in the UK, but what is it like in the USA? Firstly, Lyme Disease is for the rich, it is an expensive disease to diagnose and to treat, even without treatment it is an expensive disease as you must keep a clean organic diet, food and supplements alone can break the bank, for some. It is like running a false immune system.

It is a very controversial disease not least because the insurance industry in America will not cover treatment for it, though at least they do have MD’s who know about it, and are licenced to treat it, but at a very high price. Waiting lists can be up to a year in many states, and appointments often around $300 to £1,000 per hour. Even if you can manage this, there is no guarantee that what is prescribed for you is going to help you, as I learned, Lyme Disease is a complicated problem to tackle. No wonder the NHS refuses to touch it. What was useful about being seen in America, was that I wasn’t met with frustration or treated like a trouble maker when I asked questions, I could suggest what I needed according to my research, and I was listened to with respect. As it turns out my case was complicated because I had had Lyme for such a long time, I was suffering with Biotoxin Illness which was made worse with Anti-Biotics. The thing is, it was me who worked out I had Biotoxin Illness and the horrible complications surrounding it such as Multiple Anti-biotic Resistant Coagulase Negative Staphylococcus, or  MARCoNS. This took nearly four horrible years to discover, and at around £20,000 and with the average person spending £60,000 upwards to treat Lyme D, apparently that was cheap. Though I had to do most of the work myself, each specialist had only a snippit of information to add to the bottomless black hole of my researching mind, the truth is, that If I had not been in the States, I would not have been able to diagnose nor treat any of these problems and I don’t think I would be alive right now.

You see the complications and co-infections of Lyme Disease have proven to be far more debilitating for me than the Lyme Disease itself, which is a walk in the park compared to say systemic disseminated parasite infections, or Tachycardia symptoms and not every Lyme Literate Physician will be able to understand how to help you with these symptoms.

You could have all the money in the world, and as we have seen with the latest media coverage around famous celebrities such as Yolanda Foster, Avril Lavigne and even George W Bush, it doesn’t necessarily give you a fast-track ticket back to health.

The dirty truth is, that Lyme Disease is not meant to be cured. It is a insect vectored and sexually transmitted bio-weaponised organism  and the headquarters for its research within the UK is now based not in a hospital in Hampshire as was once the case, but in the UK’s Bio-weapons headquarters; Porton Down. This little known fact seems to be a piece of information that people find very hard to come to terms with and is most often met with suspicion, and understandably so. The disease was bio-weaponised after the second world war, but it is actually a very old disease that was found to have existed in an ancient fossilized tick up to 15 million years old. But it was modified, and somehow made its way out of one of the US’s so called ‘animal research centres’ known as Plum Island, off the coast of Lyme Connecticut (hence the name) to the community of Lyme, and between 1987 and 1984 Lyme disease first became diagnosed.

There are two distinctions when it comes to Lyme Disease, there is Acute and Chronic, but the problem lies within the fact that the main body which the American Centre for Disease Control, the CDC, takes its guidelines from; the Infectious Disease Society of America or the IDSA. Unfortunately for ‘Lymies’, the IDSA will not accept that such a condition as Chronic Lyme exists, that in fact after the standard 2-4 week treatment of oral antibiotics, if a person still believes they are suffering with Lyme Disease it is what they term ‘post Lyme syndrome’. This seemingly minor detail endeavors to save the beast that is the insurance industry of America and the UK NHS, a vast sum of money. In this like so many other politicized situations, Britain and America are in tucked up in bed together.

The other organization that spearheads Lyme research and treatment guidelines is the International Lyme and Associated Diseases Society, or ILADS, which opposes the guidelines set up by the IDSA and the contention between these two groups continues to grow. But whilst the arguments in what has been coined as the’ Lyme War‘ continue, many many lives are lost. The sad fact is that Lyme Disease kills. Mostly it kills slowly and quietly, many people are not diagnosed and instead are given the all too familiar diagnosis of illness’s such as Fibromyalgia, M.E, Depression, Chronic Fatigue even MS. Also in its late stages more serious diseases such as heart attack and autonomic dysfunction are common place. In the meanwhile peoples lives can be made miserable, people live a half life, loosing their ability to work, their zest for life and on top of this being treated as hypochondriacs, they all too often loose their will to live.

If, like me, your initial infection was as long as 20 years ago, the picture is going to be very complicated. I realised soon into my rocky road to recovery, that standard Lyme therapy, even if it was long term was not going to work for me. After the first few courses of basic Tetracylines, Anti-biotics just could not be tolerated and after several attempts, with the outcome that things had gotten worse, I had to go back to the drawing board. This was hard to do, when your very sick and your health is deteriorating fast, you really need someone to help you but alas, even the specialists in the US of A were not aware of some of the issues that I was faced with. I did not meet one specialist that was able to teach me more than I had already learned online, but still my information wasn’t enough. There was only so much progress that could be made at a set time, and I often discovered that healing too fast could be as dangerous as not healing at all. This is known as a Herxheimer reaction, or ‘Herxing’, and became an unwelcome part of my life for the last four years.

Establishing a plan of attack took years in itself, all the different layers of diseases had to be addressed in an order of urgency, and knowing which was what was confusing and frustrating. One has to take into account, mineral balancing, heavy metals, fungal infections, parasites and gut dysbiosis as well as good old fashioned killing off of bacteria, I learned that the bacteria are not always top of the list. But the hardest thing of all, is tackling Biofilm. This is because, I found that Biofilm is more than the sum of its parts………

Further reading:

Lyme Disease http://www.ilads.org/lyme/about-lyme.php

Lyme clinic UK http://www.dailyecho.co.uk/news/11179170.Lyme_disease_clinic_to_close_after_just_six_months/?ref=rss

Lyme Clinic Germany http://www.bca-clinic.de/

Biotoxin Illness http://www.publichealthalert.org/when-antibiotics-dont-work-an-interview-with-dr-ritchie-shoemaker.html

MARCoNS http://biotoxinjourney.com/marcons/

Parasites and Lyme D http://www.publichealthalert.org/parasites-and-worms-the-new-lyme-disease-co-infection.html

Tachycardia and Lyme D http://autonomicspecialists.com/chronic-lyme-disease/

Bioweaponised Lyme D https://www.indymedia.org.uk/en/2012/05/496013.html

UK Bioweapons HQ https://en.wikipedia.org/wiki/Porton_Down

Fossilized Lyme D http://www.livescience.com/46007-lyme-disease-ancient-amber-tick.html

Plum Island Germ Warfare Centre http://www.counterpunch.org/2013/10/25/the-deadly-secrets-of-plum-island/

IDSA Guidelines https://www.change.org/p/centers-for-disease-control-and-prevention-end-preferential-treatment-of-the-idsa-guidelines-for-lyme-disease-2

ILADS Guidelines http://www.ilads.org/lyme/treatment-guideline.php

Lyme War http://www.medscape.com/viewarticle/586226

Herxiemer Reaction (healing crisis) http://www.tiredoflyme.com/the-herxheimer-reaction.html

Biofilm and Lyme http://www.herbsforlyme.com/category-s/225.htm