Lyme and Co-UK v USA.

I have probably seen around 20 different doctors and physicians in the last 4 years, trying to understand what is happening in my body. Each person I have seen has not given me ‘THE’ answers, rather small clues. This was frustrating in the beginning, as most of us rely on these professionals to sort our health out for us.

When I began to travel out of the UK to see specialists, I was struck by how unempowered we are in the UK with regards to our health. We expect our doctors to tell us whats wrong, and expect, most of the time, to be able to take something to fix us, and we DON’T expect to even look at our test results. In America they seem to find this absurd, even the most oblivious tended to organise their own health; ensuring they receive their own copies of all the reports their doctors receive. It is not unusual to question a diagnosis and request exactly what they feel needs to be done with regards to diagnosing and treating.

This is of course due to the fact that in the US, with the exception of more recent advancement in free medical treatment in the form of Obamacare, medical treatment is covered by insurance ensuring it’s a profit making industry where money talks, and therefore the patient has some control. The NHS on the other hand is a publicly funded healthcare system. The investigative journalist Jim Edwards puts it quite bluntly when he says; “The National Health Service is, as all Americans know and fear, a completely public “socialized medicine” system. It’s dramatically different from the US’s patchwork system of private providers and insurance companies.” In his article he cannot praise the NHS enough, and quite rightly so, but that may depend on what is wrong with you. In the case of those with Chronic Illness’s, such as Lyme Disease and its many associated Co-infections (Lyme Disease never travels alone, often its co-infections are more debilitating and destructive than Lyme itself), the NHS appears to be lagging far behind.

The large majority of people diagnosed with Lyme Disease in the UK had to get their diagnosis outside of the UK in the private sector, the same goes with the treatment. With regards to the diagnosis, the problem is that the testing system they use in the UK is very out of date, therefore very inaccurate. A clinic that was set up by the NHS in Hampshire to treat Lyme Disease was closed down after only 6 months, leaving no support for those suspected of suffering with Lyme nor those diagnosed. After being negative in the UK (I was warned I would be), I was diagnosed positive in Germany at one of Europe’s most renown Lyme clinics the BCA , it cost around £3,000 with flights and accommodation, but sadly on my return the NHS still would not offer and support with my swiftly diminishing health, on the contrary, I was met with disdain and treated like a troublemaker for going abroad. This is not an uncommon story for those with Lyme in the UK, but what is it like in the USA? Firstly, Lyme Disease is for the rich, it is an expensive disease to diagnose and to treat, even without treatment it is an expensive disease as you must keep a clean organic diet, food and supplements alone can break the bank, for some. It is like running a false immune system.

It is a very controversial disease not least because the insurance industry in America will not cover treatment for it, though at least they do have MD’s who know about it, and are licenced to treat it, but at a very high price. Waiting lists can be up to a year in many states, and appointments often around $300 to £1,000 per hour. Even if you can manage this, there is no guarantee that what is prescribed for you is going to help you, as I learned, Lyme Disease is a complicated problem to tackle. No wonder the NHS refuses to touch it. What was useful about being seen in America, was that I wasn’t met with frustration or treated like a trouble maker when I asked questions, I could suggest what I needed according to my research, and I was listened to with respect. As it turns out my case was complicated because I had had Lyme for such a long time, I was suffering with Biotoxin Illness which was made worse with Anti-Biotics. The thing is, it was me who worked out I had Biotoxin Illness and the horrible complications surrounding it such as Multiple Anti-biotic Resistant Coagulase Negative Staphylococcus, or  MARCoNS. This took nearly four horrible years to discover, and at around £20,000 and with the average person spending £60,000 upwards to treat Lyme D, apparently that was cheap. Though I had to do most of the work myself, each specialist had only a snippit of information to add to the bottomless black hole of my researching mind, the truth is, that If I had not been in the States, I would not have been able to diagnose nor treat any of these problems and I don’t think I would be alive right now.

You see the complications and co-infections of Lyme Disease have proven to be far more debilitating for me than the Lyme Disease itself, which is a walk in the park compared to say systemic disseminated parasite infections, or Tachycardia symptoms and not every Lyme Literate Physician will be able to understand how to help you with these symptoms.

You could have all the money in the world, and as we have seen with the latest media coverage around famous celebrities such as Yolanda Foster, Avril Lavigne and even George W Bush, it doesn’t necessarily give you a fast-track ticket back to health.

The dirty truth is, that Lyme Disease is not meant to be cured. It is a insect vectored and sexually transmitted bio-weaponised organism  and the headquarters for its research within the UK is now based not in a hospital in Hampshire as was once the case, but in the UK’s Bio-weapons headquarters; Porton Down. This little known fact seems to be a piece of information that people find very hard to come to terms with and is most often met with suspicion, and understandably so. The disease was bio-weaponised after the second world war, but it is actually a very old disease that was found to have existed in an ancient fossilized tick up to 15 million years old. But it was modified, and somehow made its way out of one of the US’s so called ‘animal research centres’ known as Plum Island, off the coast of Lyme Connecticut (hence the name) to the community of Lyme, and between 1987 and 1984 Lyme disease first became diagnosed.

There are two distinctions when it comes to Lyme Disease, there is Acute and Chronic, but the problem lies within the fact that the main body which the American Centre for Disease Control, the CDC, takes its guidelines from; the Infectious Disease Society of America or the IDSA. Unfortunately for ‘Lymies’, the IDSA will not accept that such a condition as Chronic Lyme exists, that in fact after the standard 2-4 week treatment of oral antibiotics, if a person still believes they are suffering with Lyme Disease it is what they term ‘post Lyme syndrome’. This seemingly minor detail endeavors to save the beast that is the insurance industry of America and the UK NHS, a vast sum of money. In this like so many other politicized situations, Britain and America are in tucked up in bed together.

The other organization that spearheads Lyme research and treatment guidelines is the International Lyme and Associated Diseases Society, or ILADS, which opposes the guidelines set up by the IDSA and the contention between these two groups continues to grow. But whilst the arguments in what has been coined as the’ Lyme War‘ continue, many many lives are lost. The sad fact is that Lyme Disease kills. Mostly it kills slowly and quietly, many people are not diagnosed and instead are given the all too familiar diagnosis of illness’s such as Fibromyalgia, M.E, Depression, Chronic Fatigue even MS. Also in its late stages more serious diseases such as heart attack and autonomic dysfunction are common place. In the meanwhile peoples lives can be made miserable, people live a half life, loosing their ability to work, their zest for life and on top of this being treated as hypochondriacs, they all too often loose their will to live.

If, like me, your initial infection was as long as 20 years ago, the picture is going to be very complicated. I realised soon into my rocky road to recovery, that standard Lyme therapy, even if it was long term was not going to work for me. After the first few courses of basic Tetracylines, Anti-biotics just could not be tolerated and after several attempts, with the outcome that things had gotten worse, I had to go back to the drawing board. This was hard to do, when your very sick and your health is deteriorating fast, you really need someone to help you but alas, even the specialists in the US of A were not aware of some of the issues that I was faced with. I did not meet one specialist that was able to teach me more than I had already learned online, but still my information wasn’t enough. There was only so much progress that could be made at a set time, and I often discovered that healing too fast could be as dangerous as not healing at all. This is known as a Herxheimer reaction, or ‘Herxing’, and became an unwelcome part of my life for the last four years.

Establishing a plan of attack took years in itself, all the different layers of diseases had to be addressed in an order of urgency, and knowing which was what was confusing and frustrating. One has to take into account, mineral balancing, heavy metals, fungal infections, parasites and gut dysbiosis as well as good old fashioned killing off of bacteria, I learned that the bacteria are not always top of the list. But the hardest thing of all, is tackling Biofilm. This is because, I found that Biofilm is more than the sum of its parts………

Further reading:

Lyme Disease

Lyme clinic UK

Lyme Clinic Germany

Biotoxin Illness


Parasites and Lyme D

Tachycardia and Lyme D

Bioweaponised Lyme D

UK Bioweapons HQ

Fossilized Lyme D

Plum Island Germ Warfare Centre

IDSA Guidelines

ILADS Guidelines

Lyme War

Herxiemer Reaction (healing crisis)

Biofilm and Lyme














Friends, Romans and Countrymen, lend me your ears….


I am writing to you in the hope that you may find interest, advice or hope from my discoveries found along the road to health and wellness. There are a few weighty finds, some worth their weight in gold in fact.

First I want to go right back and tell you a little bit about my health story….

I used to ponder, for many years, whether a person could be affected by their parents state of happiness at the moment of conception. Like most of us do, I was trying to work out why I am like I am. I was plagued with some mysterious health issues for much of my adult life, and felt there must be a connection between health, and the soul. That maybe, what we experience early on in life could pave the way for how our bodies function ‘energetically’. I seem to be behaving like a vacuum for disease on an energetic level, and when I cast my mind back I realised that my problems had started way before I had reached adulthood. I asked my mother one day if she had brought me up to be overly cautious, as I can remember being incredibly anxious, even as a child.    She said she had brought me up the same as my brother, who was quite the opposite, quite brash and brave like many boys are. I grew up being quite reserved, shy and isolated from other kids, my earliest memory are of my mother and grandmother being brought into nursery school to talk about the fact that I would not talk. My paintings I remember were all over the walls in the nursery, and I remember the teacher exclaiming that I was incredibly expressive with my art work but just would not speak. Around this time, during an assembly of sorts (we were only pre-school age) where we all sat around cross-legged, everyone listening intently to the teacher, everyone except for me that is. I was looking at the marvelous colours this man had around his head and shoulders, like a rainbow. I was chastised for not listening for many years to come.

I found it very difficult to join in at school. I felt anxious about almost everything but something about art I found empowering. Perhaps it was a meditative state that I reached when I was drawing, perhaps it was the praise and adoration I received for being gifted in this area. Perhaps it was the need to be able to express what I was feeling inside that I struggled with in my everyday life, that made me a creative soul.

Later on in life, after being sick for many years I trying to unravel the complex tapestry of my life to try to understand why my body was so inclined to be this way.   The medical establishment had offered no clues, nor support. I for some strange reason had an impressive list of mysterious diseases that they both knew little about, and could do little to help with. Dr Do-little was my practitioner and he lived up to his name.

From a very early age I was quite ‘sickly’, often affected very much by mold. If there was mold in the house it was me that would end up instantly with a chest infection. c Back then everything was considered as bacterial and I was given many courses of antibiotics for this apparent chest infection. I would visit my dad at weekends, his trade was renting holiday flats to tourists in our seaside town of Bournemouth on the South coast of England I was always put in the room that had the mold, the room that could not be rented because of this mold. He bought and sold these houses over the years and I as a consequence I was regularly exposed to mold.

I had suffered silently with an eating disorder around the age of about 11, and diagnosed with Epston Bar Virus (EBV) at the age of 14. After this point for the I suffered very intense fatigue, I could easily sleep 17 hours a go if I was allowed to. The fact that I left home at this age and had to work nights to pay my rent as well as go to school made life very hard for me. My schooling suffered and I did not receive a decent education.

In the following years I suffered strange aches and pains in my joints, which upon numerous visits to doctors was told it was ‘growing pains’ or ‘double jointed-ness’ and by the age of about 30 I was diagnosed with Elhers Danlos Syndrome (EDS) and Fibromyalgia. I was confused, how could I have both? There was no blood test for either, rather a clinical diagnosis and no explanation as to what may have caused these ‘syndromes’. It seemed like there was a lot more going on that I wasn’t being told, but treated like a difficult patient when I asked questions. Later on after years of stomach pains, I eventually was granted an appointment with a nutritional therapist through the NHS, who diagnosed me with Irritable Bowel Syndrome (IBS), apparently caused by stress. I was advised to eat less vegetables.

This sequence of health events seemed to lay the foundations for a gradual decline in general health and well being, but to top it off I decided to put the nail in the coffin by travelling extensively  around India for many years. It was never a consideration of mine or anyone’s it would seem, to ponder the possibility that a person who had received vaccinations was vulnerable to bugs, parasites and infections in a country like India, and certainly not even feasible in the UK or USA!

On my travels I was bitten by a tick, and suffered with a terrible fever until, after a whole week, when the tick was discovered and removed. I did not know what Lyme Disease was back then. I had many other horrific bouts of vomiting and diarrhea, I had not yet grasped the seriousness of these pathogens inside my body and sadly I was not to learn until almost 20 years later. My health continued to deteriorate, but at the same time as being told there was nothing could be done about my vague diagnosis’s. One day, I decided to sit myself down and once and for all find out what was making me so sick, I had the internet now! There was no excuses anymore, everything I needed to know was there for me to discover, and I embarked upon the journey of a lifetime, the journey of self healing.

Though I have not cured myself of the many pathogenic organisms and complications that follow them, but I certainly have managed through years of research and networking, to slow down the speed of my decline of health and this blog is here for those of you with similar experiences, to stand as testament that it IS possible. It is a work in progress, but with dedication and commitment, you can too recover your natural equilibrium of good health. We all need support in reaching our optimal health, but what many of us lack is the belief that we can also take our health into our own hands, take responsibility for the wonderful vehicle for the soul that have been blessed with; our very own magnificent body.